I took the kids to the park today. As I was thinking about getting the kids prepared to leave, a man on a bike drove up with two kids in tow. I only noticed the first one right away because he was screaming “I WANT TO GO HOME” over and over and over. His dad persisted and the child was finally calming down.
My kids moved to that side of the playground so I followed. Then I noticed there was another boy with the man, an older boy. He had a stick in his hand and was waving it around in front of his face. He wasn’t playing with the other kids, he was almost dancing about as he went from bush to bush, waving the stick around…poking it into the bushes and whatnot.
At first I wondered who the boy belonged to but then I realized he looked very much like his wailing little brother. I watched the boy as he moved over to the playground and climbed up. He then proceeded to take his shoes and socks off and dropped them on the ground. I heard his dad call out a comment to him about it. Then the boy took one sock and climbed up to the highest point of the playground and watched as he moved the sock along the plastic rooftop of the playground and then threw it as far as he could.
I quietly walked over, collected the socks and shoes and brought them over to the father.
“oh thank you, you didn’t have to do that” he said as I smiled at him.
“no problem, I know what you’re going through right now”. He gave me a funny look and I got a little scared, maybe he didn’t know yet? “Your child has autism right?”
“oh yes, he does. Not this one but my other one. How could you tell?”
“my son has autism too”
We spoke for a long long time about our boys. His son was clearly lower functioning than Silas, very different from him. He had mastered the art of disassembling things. Sometimes the father will go upstairs to find all the doors off their hinges with no knobs on them. He seemed weirded out when I exclaimed:
“Oh wow he’s got great motor skills then!”
I guess he doesn’t find it as impressive as I do? He was impressed with Silas’ splinter skills as well and had Silas count backwards for him, which Silas gladly did.
It’s odd to me, though, that this father knew almost nothing about autism. He hadn’t read any books, he hadn’t researched online, he didn’t know what “sensory” was or what ABA therapy was either…even though his son gets it once a week. He’s stayed at home with his son for two years now…and knows hardly a thing!
I’m not judging him, I just don’t understand that mentality. Innocently ignorant to the fact that this is a BIG deal!! You could tell he was desperate, worn out, frustrated, tired. That’s my motivation thought. It could be at least 60% selfish. I need the help, I need this to get easier, I need breaks from my son when he’s in therapy. It’s just as good for the rest of us as it is for Silas. So why wouldn’t you seek help? Why wouldn’t you do whatever it takes to even make your own tired situation better??
People say I’m so fantastic, but honestly, a lot of it is because I need the help just as much as he does. Luckily it works out just as well for Silas as it does for me.
I can’t say they’re completely apathetic to the situation. They have taken him to the naturepath and such and have seen great advances. He seemed like a very nice daddy and when our conversation was finished he had memorized the names of the supplements that worked for us and he asked over and over again what we’re doing to make Silas the way he is today. He seemed inspired by the end of it, which is something that happens when you come across another parent in your situation. It’s the only thing that’ll get me going sometimes, hearing other success stories. I hope I can be that for people.
I just wanted to be near his son, though. I almost opened my mouth and offered to volunteer to do therapy with him. I see a child with autism, especially one with lower functioning autism and I just wanna be a part of him. I wanna show him the beauty in the world out here and see the beauty of the world he sees around himself. I want to tell him he’s important in this world.
There’s such wisdom in the eyes of a child with autism. They know so much. They see more than we do. They understand what we say. This father was so tired of having to watch his son 24/7, I wanted to breathe life back into him and show him the beauty in his son. It’s so much easier to see it as an outsider who isn’t as ragged from battling this disorder.
I dunno the purpose for this post. I felt like I needed to post it. Not to boast about my good deeds or say I’m better than anyone. It was just a powerful moment I had today with this man and his child. I hope to see them again because I think we have a lot to learn from each other.